It’s Claudia from Providence, RI. For new followers, I’m the founder of the Don’t Punish Pain Rally Organization. I don’t raise money, I don’t accept donations, and the members don’t raise money either. And yesterday we had our second NATIONAL PROTEST!! (APPLAUSE NOW!!!!!!!)
Why did we protest yesterday? Because pain patients have been robbed of the ability to live a pain-free life due to the CDC guidelines implemented in 2016. Doctors are fearful to prescribe and that’s why the Doctors Collaborative was created. That’s a program sponsored by the DPP and it’s for providers only. Be sure give your doc a PROVIDER FLIER when you see him/her because nothing will change until our providers are on board. It’s a confidential setting on dontpunishpainrally.com
Yesterday, we celebrated our second protest that took place nationwide. I thought it was a success…but I always strive for the best that we can achieve as a community.
I, ironically, came out of remission and went to the ER because I thought I was dying (I’m being dramatic) But once I received fluids, Remicade, and pain mediation, I slept and I was ready to protest yesterday. I was sick and I exhaused but there was no way I was going to miss MY protest.
Yesterday, started off a little bumpy but it ended on a great note!! That’s to be expected with any protest.
I would like to thank the thousands that participated in yesterday’s protest.
To see the media coverage that pain patients received is pretty powerful shit. You know, when you work your ass off, and it consumes you, it takes you away from spending time with your family, and then the big day is here….it’s a euphoric feeling. And many members cried when they saw their stories being, not only TOLD, but being RECEIVED.
During one interview, I told the reporter, “I think the general public has grown tired of the phrase “opioid epidemic” because the real epidemic is now being acknowledged: and that’s illicit Fentanyl is being shipped in through the US postal service and it’s killing millions.
All the politicians jumped on the “opioid bandwagon” because that’s what they do during the crisis. But the real crisis is now coming to fruition.
Yesterday was our chance to be heard. And we were HEARD (APPLAUSE, AGAIN, PLEASE)
We definitely had some “growing pains” but those are a must when accomplishing a protest of this magnitude.
In a perfect world, I would love to have 10,000 protesters in Washington the same day that Andrew Kolodny’s PROP crew protests. But we are pain patients, many are disabled, live on a small check, and we don’t have the means or the health to travel to Washington…so that’s where Kolodny has the upper hand. But not for long (wink, wink.)
But guess what….yesterday, was all about YOU!! And YOU ROCKED THE RALLY!! YOU PROTESTED WITH DIGNITY!!
Protest is powerful.
Were there problems yesterday? Absolutely.
I know hundreds were disappointed at the lack of attendance but that’s to be expected when you organize a pain patients’ protest. Many of you said, “I was in pain and I went.” I understand your frustration.
I was frustrated because I have advocated for many and they didn’t show up at my protest. I went out of my way, drove to their doctors’ offices with them. and got them the help they needed. And they didn’t show.
And there’s always sooooo many excuses…but, frankly, I don’t like to hear the complaining so I tune it out. Most that know me know I don’t like the complaining. I think it’s a negative force that just takes you down.
Millions think that others will fix this problem for them. But in this situation, it’s not like that. Because millions need to be heard and that’s why attending your protest is so important.
I received messages from some wanting the “okay” to cancel their protest because it was raining. And I think people wanted me to say, “It’s okay..you can cancel;” but those words wouldn’t come out of my mouth.
You either want to protest or you don’t. But if you don’t, you can’t tell people why your pain is preventing you from attending the protest because everyone involved has pain. So in that situation, you probably shouldn’t vent about your pain because it’s not well received on the FB page. (DON’T KILL THE MESSENGER…THAT’S ME 🙂 🙂
(Obviously, the Carolinas were cancelled due to Flo)
You have to focus on what you did receive. And when I was scrolling through the national page today, I saw one media interview after the next and that is some powerful shit. Because let me tell you something, two years ago, that would have never happened. And it’s happening now.
So please don’t be discouraged because not enough people came, or it was too hot, too cold, too little people, too little media….remember: something great always starts with something small.
We organized 80 states…80 STATES…Can you imagine?
Be proud. Be proud. Many of you stepped out of your comfort zone, and that alone, is empowering.
What happens now?
I will focus on getting the Doctors Collab running smoothly and getting Canada/Australia organized. If you’re in either country, FB is a must because that’s how I can organize the best.
When does the US protest again? The next national protest will be the end of January, 2019, date is to be announced, and will have a rain date in place as well.
What’s going to be different this time around?
We will be accepting applications for the role of a contact person. We still start to accept those next week and all the details will be on the website. (what’s required to be a contact person.)
A contact person is the most important role because they need to organize their venues, get media, monitor their FB page, and they need to work with others…zero drama.
There was too much drama these past five months.
All protests in January will take place indoors and permits will be required for all venues. I would like to have 2-3 protests for each state and I think having the protest indoors will alleviate a lot of the issues that we encountered yesterday. Don’t worry about foot traffic because someone will be outside your venue passing out fliers. But for the pain patients, indoors is best.
On behalf of the senior teams members, thank you, thank you, thank you.
I would like to thank Ernie Matthews for running our website so perfectly. I would like to thank our senior team members for returning and for organizing your states as well as other states.
Spread the word, people….because we’re being heard. Doctors, patients, lawyers…they’re all involved, baby!!! It’s our time…