Hey there!!!! It’s been a while.
This blog is R rated……..so keep on reading!!!
For those of you who follow me, I’m a Crohn’s girl, had an idea to start a national protest to bring awareness to pain patients not having access to pain meds, and I ran with it.
And it took off. It’s big. Google me. Google “Don’t Punish Pain Rally.” We’re huge. (ugh, that probably kills my haters.)
Since the inception of the protest, I made a television commercial, got a radio spot, got people t-shirts, had three national protests, got some legislation passed, and I’ll be working as an advocate effective July 2019. (NOT BAD…right?) (applause)
You know why all this happened? Because I’m a do-er……not a say-er. I’ve dedicated thousands of hours to this cause because I believe in it. But also because EVERYTHING I DO, I DO 100 PERCENT!!
The biggest obstacle in the pain community is the hatred. I’m not talking, “You’re a fat lazy asshole” hate, I’m talking, “We need to call the FBI” hate.
Now, I’ve not shared this with my “normal” social media friends, because, quite frankly, I was embarrassed.
You see, when you do something and you’re successful, people will F-GHATE YOUR GUTS for it.
And that’s exactly what happened and is happening to me.
This bullshit started with an “advocate” from MA. The minute I talked with this “lady” on the phone, I knew she was an addict.
She had a nice little scam going; she got her status as a non profit (still pending) and she thought she was going to scam pain patients out of money.
Until I came along. 🙂
You see, being a court reporter, a know a lying sack of shit 10 miles away. This white trash bucket felt threatened by me so she went to court THREE TIMES, seeking a harassment order, hoping the judge would grant her something. The judge granted her nothing. You know why? Because she’s just another moron on social media who posts nothing but INSANITY. This trash barrel claimed I was jealous, I was stalking her..blah, blah, blah…she was your typical white trash, social media, desperado, looking to make a quick buck.
And, this, my friends, was my first interaction with psycho-hate.
Keep in mind: I’m fighting for their rights to get pain medication. (Um….do they need pain medication or electrical shock therapy?)
My second MAJOR interaction with social media with hate was with a former team member.
This nut was a known predator on social media. She would join various groups just to be a part of a group. She would befriend people, and before you know, she would be stealing identities.
I would say this beast was the ringleader of all the hatred that came my way.
She would create one post, then before you know it, you have 400 people commenting, believing everything she would serve on a platter.
Before you know it, there’s a full-blown hate fest.
There’s one guy, in Massachusetts, whose FB page is dedicated to sports? Nope. To politics? Nope.
It’s dedicated to “CLAUDIA MERANDI’S LIVE FEEDS AND HOW SHE’S DECEIVED MILLIONS OF PEOPLE OUT OF MILLIONS OF DOLLARS.”
Dude…really? Um…get a job, you friggin moron.
This fat asshole is determined to prove everything he assumes about me. (I wouldn’t know this fat ass if he fell from the earth). This “man”, and I use that term loosely, spends his days and nights on FB, has all my live feeds and does a play by play.
(Well, here, Claudia says she’s taking a job. But here she’s scratching her ass. Let’s break it down and see why Claudia’s scratching her ass.)
The problem with these people, if you don’t react, it infuriates them.
And when hate fails, that’s where the lies come in!!!!
And then I came across a post from a lady from Kentucky.
I thought I was seeing things. This trashcan was posting about my kids.
This hillbilly was looking for my kids’ birthdates, if they were on Medicaid, their last names, my assets (there’s a term none of them are familiar with because THEY NEVER WORKED), their dads’ names, when I got my period, if I got my period, how heavy was it; pads versus tampons; how long has it been since I had sex (okay..I’m exaggerating but it’s been a while.)
But then I saw one post. And I stopped. I stared. And I said, “That’s it. You sons of bitches crossed the line.
I started to file weekly reports with the FBI.
I was and I remain to be fearful for myself and my children.
These people have no boundaries.
Here are just a few of the things I’ve been accused of:
- I’m not me.
- There’s a Claudia Merandi but it’s not me. It’s Claudia impersonating Claudia.
- I called SSDI on people. I never knew such a thing exists….but these fuckers do because obviously THEY DO IT!!
- I’m not sick. I don’t have Crohn’s. That colostomy bag that I had didn’t belong to me. It belonged to somebody else.
- My kids….they’re not mine….they’re stunt kids.
- My body….it’s mine….only because I’m not sick.
- I stole all the money from the GoFundMe to get my botox/filler/face lift. Let me set the record straight; I LOVE BOTOX, FILLER, AND FACELIFTS….but Fox Business didn’t run the commercial because they adore me….they ran it because I gave them $7,000.
- Here’s my favorite: “the receipts from Fox aren’t real.”
- I’m a narcissist…(maybe a little; I’m an Italian Scorpio)
- I have a chauffeur.
- I’m married to a millionaire (that’s who I’m having all this great sex with)
- My mom isn’t my mom. She’s a stunt mom.
- My second husband left me because I was cheating. (I’ve never been married)
- My children’s book was being released to coincide with the protest and the commercial.
So, last week, after filing weekly complaints with the FBI, an agent finally calls me.
He explains people on social media have rights.
He tells me to get a lawyer. So I did.
The posts about my kids have been deleted.
Poor guy, dedicated one week of the FBI’s time to dealing with this shit.
So that’s what we’re up against in the pain community. And sometimes I question whether I should be involved with this cause.
Am I doing the right thing?
But then I get a call from a mom, whose kid is in the hospital, with a bad Crohn’s flare; she’s not getting proper pain meds, and I cave, and I advocate for her.
When I started the DPPR, some people didn’t know who their senators were. Now they’re registered lobbyists, they’re fighting for their rights, they’re interacting with the media, they’re sitting down with lawmakers. Some went off and formed their own groups.
So, yes, I am doing the right thing.
You see, these haters, they’re just sad human beings. They feel a sense of euphoria when people comment on their posts or if they see likes. Some are legit pain patients; sadly, many aren’t.
At the end of the day, people hate me because I’m good. I’m one of the best patient advocates in the country.
I’m selective in who I advocate for. Why? Because I have a great reputation.
Am I modest? Nope…not when it comes to advocating.
Nobody has ever pulled off a national protest for pain patients. We’re the first organization to receive media for the cause. And we’re only getting stronger by the day.
These people never accomplished anything for the community. Never attended a protest, never got a resolution passed; too many “nevers” to count. Because it’s social media, their reality is a virtual reality.
They’re just filled with more hate than I’ll ever know in a lifetime.
And thank God for that.
Keep fighting everybody!!
Remember, you’ve got a friend in Providence!! (even the haters do)
One of the comments from my last blog, was from hater Valorie Hawk. Oh, sweetheart, I’m transparent…btw, green is not your color (wink, wink)
(The last protest, January 29th, was a success. (the haters would say otherwise) We protest, again, the end of May. We protest at the CDC in Atlanta, GA on June 21st. Google to see the media the amazing members of the DPPR received.
Thank you for supporting “Crohn’s Disease, the other C Word” available on Amazon; Dotty on the Potty will be available on Amazon on April 1st, 2019.