Well, it’s been a while…. good to be back.
I promised some fellow Crohnies to blog about Crohn’s and raising teens. Let me start by saying, I’ve never seen a meme that says, “I love my teen.”
A few weeks back, when the temperatures reached 120 degrees with 100 percent humidity, I was touring colleges with my 17-year old. It was so f’g hot, that I started to hallucinate, feel confused, dizzy, and I had the urge to throat punch the kid that was touring the campus with us. I found myself getting angry because I couldn’t take the heat another second and I could hear the rumbles start. I told my kid, “I’ve got to get the F out of here before I poop my pants. I don’t feel well at all.”
She replied, “OH, MY GOD…you’re so selfish.” um….huh? I drove “Tish” (short for Morticia) six hours the day before to another college that she’ll never attend.
Well, the nice 13-year old (she’ll turn any day now) said, “Francesca, mom is sick..you’re so mean.” (good kid..she gets a present). I promised the older kid I would make it up to her and get her nails down after we left the campus. Once we FINALLY made our way back to Rhode Island, I drove “Tish” to the nail place. Now, I think I’m doing something nice, right? I drove her hours, almost threw up on the campus, and now I’m taking her to get her nails done. But she has this perpetual look on her face, the one you make when you smell something bad. What the fuck are they so miserable about?
So we exit the nail joint and I ask her if she likes her nails and she responds, “Yeah” and we head home. When I got out of the car, I felt shaky and weird. I stepped up to get in the house and I lost my balance…and that’s when the tragedy occurred. Instead of fainting, I fell backwards and stepped on her freshly-painted toes.
She screams, “OH, MY GOD….YOU RUINED THEM.” I actually heard myself say, “Mommy will take you back.” And that’s when my 82-year old mom called my kid a dirty rotten rat (that’s her favorite expression.) My mom said she’s never met kids that were so ungrateful and entitled until she met mine.
I started to explain to the kid that I took Methotrexate the night before…but then I stopped myself. And I thought the following:
A. She’s traumatized from being raised in a hospital but that’s bullshit because she got every toy EVER while I was admitted. And she’s only like this to me.
B. She’s suffered an aneurysm due to the heat because nobody could be that cruel…not even a teen.
C. Genetics prevail and she’s just like her old man.
She’s an asshole teenager.
I remember, when I was a teen, my mom looked at me and said, “One day, you’re going to have three just like you.”
It all makes sense now. It’s payback time. And that’s exactly what I’m doing. But now I take care of my mom, she lives with me, and she’s on a pedestal…here’s hoping.
Now, what’s going on the pain medication bullshit? Pretty much this: anyone who needs opioids is screwed. Before it was just a pain patient epidemic, but now everyone is screwed. If you get cancer, it doesn’t matter; you won’t get treated. Post-op pain? They don’t care..suffer. If you’re in pain management, you have a 50 percent chance of receiving pain medication. The government needs to make back their millions they put into this fake opioid crisis horseshit agenda and the only way they can do that is by putting the country on Suboxone.
The elderly have been ripped off of their pain meds and are forced into Hospice. People who have relied on high doses of pain meds are committing suicide because they’ve met despair and cannot stand the pain.
I’m afraid for the country. I’m afraid for me. If my illness gets worse, I don’t know what will happen. But I do know pain patients will prevail. But how? We need millions to hire lobbyists and to form one solid organization that’s going to fight until the Senate begs us to stop. Our job: make their lives a living hell by advertising. We need commercials just the same as the anti-opioid zealots have. And then we need sanctions imposed for doctors who don’t treat their patients. Plain and simple. Doctors need to be held accountable. There will be a massive class action lawsuit because these assholes running our country respond to one thing: MONEY!!
I’m definitely feeling defeated but I still have some fight left…you need to have some fight left as well.
Protest on September 18, Tuesday. You don’t have to go to your capitol to be heard; go to a CDC, FDA, CVS, Walgreens, State building, city building, parks…JUST PROTEST!!
Someone will fund our cause who has millions. It will happen. Don’t forget we now have a web dontpunishpainrally.com or visit us on FB “Don’t Punish Pain Rally Page.” Please don’t give up. Find me if you need me.
Remember: you have a friend in Providence, RI.